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2019-06-18 23:50:04 UTC 2019-06-18 23:50 UTC

josh:  Done! with the first treatment anyway - it was about 20 minutes of radiation for the 2nd tumor.

18 "grays" (or maybe just "gray" without the 's') - a little less than I was guessing it would be, but substantially more than a single day of "fractional" treatment like I had 6-7 months ago (30 visits totaling 60 gray) and will start again probably on Thursday for the 3rd tumor area (60 more gray, I think, so the 9-ish month total will be 138 spread across the three different places - I probably got more than that every day living close to the Pantex plant when I was in elementary school - haha - joke. sort of a joke. maybe not. hmmm.).

Feeling good - sleepy, but good. I like the thought of that returned second tumor getting capped.

I have been on chemotherapy called lomustine - you take the pills once every 60 days. I took it last in April, thinking we were going to start radiation back then.

The progression of my tumors in the last two months verifies that, like other chemo drugs, lomustine alone doesn't do much to glioblastoma unmethylated wild-type. I'll get some new pills probably tomorrow or Thursday and they *will* hopefully make the fractional radiation treatment more effective.

Love you all! I'll post more soon.

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2019-06-18 01:23:43 UTC 2019-06-18 01:23 UTC

josh:  OK - I got scheduling for radiation. I'll get one day of treatment tomorrow for the returned second tumor:



(which has returned after being cut out in March),


and I'll get 30 focal treatment sessions (over 6 weeks, I suppose) for the area around the third tumor starting on Thursday:



this is the diffuse one that isn't a candidate for traditional surgery - looks like 2 tumors in this image, and there are one or two more of these if you go up/down, I think, but we're talking about it like it was one.

Both these photos are reversed on the left/right basis compared to what I've been posting -- whenever I see the MRI images at the doctor's office, this is true - I think because the photos are sort of from the bottom looking up.

The MRI viewer software I was using before reversed the image, so what I posted earlier had expected left/right sides -- the ones above need to be seen as if they're reversed (I would have reversed them before posting, but I would have also reversed the doctor's numbers). I'm still working on getting up to speed with Ubuntu MRI software, so these are actually pictures of the screen in the radiation department - with the bonus of the doctor circling the problem areas.

Added to the radiation I got at the end of last year for the first tumor (like 7 months ago), this does add up to a fair amount of juice (140 to 180 "grays" I think, depending on how much I get tomorrow), but the tumors are far enough apart that the total treatment for a specific area probably won't exceed safe limits.


And this time I get what has to be my friendliest looking mask yet:



(yikes!)

Now the song. After that mask, we all need something to help us relax.

I'm running out of songs that don't have a sort of deathiness going on, but this is a happy song. This is me on guitar/ukulele/banjo, and I did the 'oooh' sounds in parts of the song. All the rest of the vocals are my good friend and vocalist Ron. We're covering a song called Dark Hollow by Bill Browning:




It didn't occur to me that I can't play the banjo until it was too late.

If you're curious about the ukulele - and of course you are - I got it from my grandmother, who got it from her uncle Dwight Marfield. A friend of mine pointed me to his IMDB page which has a trivia entry saying: "As a musician, he played Ukulele on stage and he worked and played with blues man, Leadbelly." -- I decided that says that he played this ukulele with Lead Belly - and now you're hearing it :)

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